December 2, 2009 I was diagnosed with Hodgkin’s Lymphoma.
And after 8 long months, today is my last day of cancer treatment on the whole.
My doctor tells me remission is an antiquated term. The best tests they can do now only show areas of cancer that are one centimeter or larger (which is pretty big if you think about it). I reached that point in April and continued on for several more months of treatment as a best attempt to get rid of any cancer smaller than that but there is no way to tell for sure. The term that will be used in my case instead is freedom from progression which means at this point I have no noticeable growth of cancer.
Follow up tests and check ups start Monday and will continue for a minimum of 5 years, getting further and further apart the longer my results come back cancer free.
Now for the really hard part. I’ve been on disability leave since January thanks to almost daily doctor’s appointments and a slew of adverse side effects but in 3 and a half weeks I’m planning to go back to work. My biggest concern is that I forgot how to do my job. I probably didn’t forget everything but maybe I forgot some small but essential things.
I’m also concerned about lingering extreme fatigue from the radiation treatments (that side effect is supposed to be over about a month after treatment is complete) and that by adding 8 hours of work back into my schedule I won’t have time to do all the things I need to do.
So I’m starting now to build a new daily routine. I have time scheduled after work each day for exercising, eating, showering, blogging, and relaxing by reading, watching tv, or playing video games and I’ll be in bed in time to get a solid 8 hours of sleep (which will hopefully be enough). I know it takes about 3 weeks to develop a new habit, so I’m getting started on my new schedule now.
Why do I feel the need to schedule all of this? Because before I went on disability leave, I wasn’t even able to find time to eat or shower much less do any of the things I wanted to do after work, I was practically asleep by 6 every night.
Today I leave you with the music video of Jack’s Mannequin’s Swim. Andrew McMahon, the singer/songwriter, survived leukemia and wrote this song specifically about the challenge of getting back to a normal life after cancer and how you just have to keep going no matter how hard it seems. I find the song infinitely sad and uplifting at the same time.
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