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December 2, 2009 I was diagnosed with Hodgkin’s Lymphoma.

And after 8 long months, today is my last day of cancer treatment on the whole.

My doctor tells me remission is an antiquated term. The best tests they can do now only show areas of cancer that are one centimeter or larger (which is pretty big if you think about it). I reached that point in April and continued on for several more months of treatment as a best attempt to get rid of any cancer smaller than that but there is no way to tell for sure. The term that will be used in my case instead is freedom from progression which means at this point I have no noticeable growth of cancer.

Follow up tests and check ups start Monday and will continue for a minimum of 5 years, getting further and further apart the longer my results come back cancer free.

Now for the really hard part. I’ve been on disability leave since January thanks to almost daily doctor’s appointments and a slew of adverse side effects but in 3 and a half weeks I’m planning to go back to work. My biggest concern is that I forgot how to do my job. I probably didn’t forget everything but maybe I forgot some small but essential things.

I’m also concerned about lingering extreme fatigue from the radiation treatments (that side effect is supposed to be over about a month after treatment is complete) and that by adding 8 hours of work back into my schedule I won’t have time to do all the things I need to do.

So I’m starting now to build a new daily routine. I have time scheduled after work each day for exercising, eating, showering, blogging, and relaxing by reading, watching tv, or playing video games and I’ll be in bed in time to get a solid 8 hours of sleep (which will hopefully be enough). I know it takes about 3 weeks to develop a new habit, so I’m getting started on my new schedule now.

Why do I feel the need to schedule all of this? Because before I went on disability leave, I wasn’t even able to find time to eat or shower much less do any of the things I wanted to do after work, I was practically asleep by 6 every night.

Today I leave you with the music video of Jack’s Mannequin’s Swim. Andrew McMahon, the singer/songwriter, survived leukemia and wrote this song specifically about the challenge of getting back to a normal life after cancer and how you just have to keep going no matter how hard it seems. I find the song infinitely sad and uplifting at the same time.

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Done with Chemo

May 18, 2010 · 13 comments

I am thrilled to announce that I am done with chemotherapy!

In November last year, I noticed an unusual bruisey bump on my chest. I didn’t remember running into anything that would explain the bump and it was getting worse not better so I went to the doctor to get it checked out. After a slew of tests, I was diagnosed with stage 3 Hodgkin’s Lymphoma in early December.

I had a softball size tumor nestled in with my heart and lung and pushing out between my ribs which was the bump I could see and feel. Even having been through it myself, I will never understand how people can have these huge tumors and not even know it. Had mine not poked out between my ribs, it wouldn’t have hurt and I wouldn’t have noticed.

Chemotherapy began in mid-December and I’ve been going every two weeks since then. After eight treatments, another slew of tests was done and they showed no more sign of the cancer. The tests are only accurate down to 1cm so I needed two more months of chemotherapy to be sure any possible areas smaller than 1cm were also eliminated.

I get a three week break now but it’s still a long road ahead. The tumor is dead but it’s still mostly there, so I need 18 sessions of radiation therapy scheduled for June and July to get rid of the mass itself.

Hopefully life will start getting back to normal come August.

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Last month, Slashfood announced that Santa Clara county has banned happy meal toys:

Santa Clara kids and parents alike might have a hard time understanding why they can’t get a toy for their child when advertisements and their Iowa cousins tell them they should be able to. We suspect this might lead to the inevitable: families driving across county lines just for some plastic.

Are they writing about me?

Granted I’m an adult now, but I live in Santa Clara county, I have Iowa cousins, and yes I’ve made my parents drive around to multiple McDonald’s locations in search of specific happy meal toys.

Teenie Beanie BabiesRemember the Teenie Beanie Baby craze?

We may have gotten a little crazy in 1998. I can remember our family of 5 ordering 20 happy meals so we could get the toys.

That year pretty much did it for me as far as McDonald’s goes. After many days of multiple happy meals for dinner I was done. I can only think of two instances I’ve eaten at McDonald’s since then: both when I was traveling through the middle of nowhere and it was the only option.

Coincidentally, 1998 was also the year In N Out burger opened in my town which became my next fast food obsession and didn’t wane for almost 10 years until it was replaced by my obsession for Chipotle.

The box of Teenie Beanies is still sitting in my garage and there are tons of them in it (maybe 100? maybe that’s exaggerating or maybe it’s not, I’m too scared to count) so I’ve got happy meal toys to last the rest of my life, but now if I wanted more it’d be a 20 mile drive at minimum to get one.

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So I’m three months into a six months of scheduled treatment for Hodgkin’s Lymphona and currently require an IV or blood test on average of slightly more than one time a week. To borrow some World of Warcraft jargon, all of my veins are now on cooldown and if they try to reuse any of them one of the following debuffs more than likely applies: collapsed, exploded, spasmed, sclerosis, retracted, or “we got the needle in the vein but for some reason no blood is coming out” because I’d apparently also be totally useless as a food source to a vampire at this point.

Occasionally, they can get a usable vein on the first try but just as often it’s taking three tries. Thus my doctor is strongly suggesting I get an IV port which would be installed in my chest or near my elbow and provide access to larger, deeper veins. In addition to having the benefit of not being poked with a needle so often, receiving my chemotherapy treatment would be less painful because the veins it would be going in to would be larger so the pain would be distributed more lightly over a larger area.

The major drawbacks are:

  • this would be the only thing related to the cancer that would leave me with an external scar
  • I’d have a hunk of plastic/metal in my skin as a constant reminder that I have cancer
  • last week when I was at my check up, another patient went into cardiac arrest while having their port installed (granted, the average patient in that department is 2-3x my age)

But after 3 months of being poked with a needle (which I hate) two or three times a week, I’m finally leaning towards the port. The idea is made slightly more palatable by this recent XCKD comic which when it first came out I thought was amusing but now I think it’s really funny in that I’m laughing like a manic because it’s now so true that I don’t know what else to do sort of way.

XKCD Port Surgery

I think a USB port would be way more useful in the long term too. I’d never have to worry about finding a place to plug in my iPhone again.

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